Tidbit 11

...I remain highly ambivalent when I post here with details about how M.E. affects my life and art-practice. Almost as soon as I press ‘publish’ I want to suck the words back in – partly because illness is such a private/personal thing, partly because I worry about it becoming the main prism through which my artwork is viewed, and - not least - because this is a forum for visual arts and I feel like I’m bringing in something that is out of place here. Last week I came across a broadcast* and a piece of writing** which explore the issue of secrecy around illness, in this case M.S., and the terms used – disclosing, coming out, passing for a well person – give a clear indication of how difficult a decision it can be to tell – not even all, but just to say: I’ve got this. It’s hard enough to adjust to one’s foundering physical functions, with all the unpleasant and undignified symptoms that may entail, but what about the fear of consequences say at work, the fear of being judged, embarrassment, even shame, as if illness was a personal failing? Combine this with a process of mourning around all that you can’t do anymore and you can see how all aspects of being are affected...

If you'd like to read more go to Sleep-drunk I dance